Showing posts with label National Migraine Centre. Show all posts
Showing posts with label National Migraine Centre. Show all posts

Thursday, 6 September 2012

Did you know? It's Migraine Awareness Week

Volunteers model the new NMC
vests outside the centre's iconic front door

If you suffer from migraine, you are aware of it all the time. But for the rest of you, now might be the time to think about it in Migraine Awareness Week. To mark the week, the fantastic National Migraine Centre (NMC), of which I have the privilege of being Vice Chair, has launched a campaign to enlist sports enthusiasts to raise funds for the centre. To give any volunteers a boost, the centre has commissioned fab vests (see above) that are available and jolly natty they are too. If you are interested in doing a run or cycle or any athletic endeavour to enable advances in your own care or that of someone you know and love, please contact the centre.

Migraine is a very serious and, for some, crippling condition that can strike at any time, put life on hold and leave sufferers cut off and desperate for treatment. The NMC leads the world in the development of treatment for the condition, pioneering ground-breaking research into new techniques such as the centre's Medical Director, Dr Giles Elrington, leading on the use of botox which was recently covered in the national press. I recently participated in a hypnotherapy treatment group at the centre, which I found very useful. Getting to know some of my fellow sufferers during the program really brought it home to me just how hard life can be for those with severe symptoms.

We need people to understand how serious migraines can be and also how varied and life-enhancing breakthroughs in treatment are for some of us, with a desperate need for more research into other forms of the condition. We know a great deal more about migraine than we used to but, like the brain itself, many questions still go unanswered. The NMC is the place where those questions are being asked. Please support us in doing more.

Friday, 27 July 2012

In public service, does size matter?


Steve Saunders from PwC sets delegates straight: growth is all about competitiveness   


At the University of Northampton, public sector spin-out platform, the Transition Institute, announced today that the university was to become a strategic partner for the Institute. Also, Professor Simon Denny, the man charged with enabling Northampton to become the UK’s first social enterprise university, is to join the Institute's board. 

Speaking on behalf of the Institute, its Chair, Allison Ogden-Newton, said, “We are delighted to welcome the creative input of Northampton, which is fast establishing itself as at the forefront of social enterprise development. Its energy and expertise will be a fantastic addition and helps us take the debate on the future of public services up a gear.”

Simon told the audience, "If the level of debate and contribution at today’s event was anything to go by, the university's decision to become a partner of the Institute is one it is unlikely to ever regret.”

This announcement came at the latest Transition Institute Camp on scaling up, where those who want to spin out services or want to bid for new service contracts can learn from the market leaders and industry experts, and share their experience and questions adding to developing research.

Steve Saunders, Director of PricewaterhouseCoopers (PwC), sparked a lively debate about preparing to thrive in an increasingly competitive market. He charged participants to think about why they think the service they provide is different, what they want to be remembered for and to really scrutinise where the market for that is.

Paul Jansen, consultant at Stepping Out, the specialist service for spin-outs, described this sector as a market that is in its infancy. He compared spin-outs to the motor industry in the 1930s where there was excitement for the novelty for a revolutionary form of transport, but where efficiency and speed had not yet been achieved. Paul made the point that we need to recognise the innovation sparked through independent service providers and told his audience about social enterprise, the National Migraine Centre which is a world leader in headache services that has developed therapies and treatments previously unheard of in the NHS. In that sense the services available at the centre are not spun out, but have achieved unique complementary status so common in social enterprise where innovation can be easier to develop than in the mainstream.

Owen Wilcox from TTP Law
Owen Wilcox, a partner at TTP Law, filled delegates in on the legal dos and don’ts of going it alone and illustrated his points with apocryphal tales of social enterprises that have failed, such as Secure Healthcare, which closed after only three years because it did not anticipate the potential impact of its contractual obligations and started with an inappropriate corporate structure. Owen took delegates through the treacherous waters of TUPE and asset transfer and pointed them to early adopters looking at the secrets to their success.

Working with Sabina Khan, advisor to the Institute, delegates discussed and analysed the Institute's latest research Scaling up your business: expansion models for spin-outs, written by Dan Gregory. The enthusiasm of delegates derived some insightful observations that came from their considerable experience in the field.

Delegate Richard Catherall of Katarsis Ventures contributed to the debate by making the point that outsourcing authorities often go for scale thereby missing vital potential. “Local authorities like large things sometimes simply because they are big, which doesn’t acknowledge that an opportunity of spin-outs are to spin services apart. The focus is often around the spin-out and in actual fact it’s an opportunity for the parent body to change. It’s not just about the egg, it's about the chicken … which came first incidentally."

All of the comments made at the event were captured and will be reflected in the final version of the research available on line at the Transition Institute.

Friday, 13 April 2012

How I finally conquered the misery of migraine

'I would dose myself up with painkillers and try to get through it - you can't just pull out of a big gig,' said Francis Rossi of his migraines

Check out this article in today's Mail on migraines that describes the trials of Status Quo guitarist, Francis Rossi and name checks the National Migraine Centre which is the world beating migraine research and treatment centre I have the privilege to be on the board of:





As the frontman of Status Quo, Francis Rossi is famous for his head-banging performances. 

Yet as he belted out hits such as Rocking All Over The World during the band’s many concerts, he often wanted to be anywhere but on stage — because he was suffering with agonising migraines.

Sunday, 22 January 2012

Great news for migraine sufferers

This week I attended the spectacular launch of the National Migraine Centre, of which I have the privilege to be on the board. 

The event, complete with jazz quartet, took place at the very grand Haberdashers' Hall in the City of London close to the Centre, which is in Charterhouse Square, behind St Bartholemew's Hospital. The evening celebrated not only a snazzy rebrand of the City of London Migraine Clinic, the former name for the Centre, but also to publicise new, cutting-edge services available to all migraine sufferes across the country.

Our Medical Director, Dr Giles Elrington, gave a fantastic and highly entertaining presentation on migraine to the gathered audience so even long-term sufferers like me learnt a thing or two. Did you know, for instance, that one in five people in the UK suffer from migraine? Giles outlined causes and some of the most current therapies. He talked about the research that was happening at the Centre including work with botox that can be injected into the head and is proving extremely effective.

The philosophy of the centre is that we "pride ourselves on our philosophy of care, which is based on medical excellence combined with an approach directed towards each patient’s individual needs. Our aim, to improve the lives of people with headaches and migraine, is at the core of everything we do. In turn, how we work is always based on that aim and so the person at the centre of everything that we do is you – the patient."

Giles talked about the many thousands of patients who had been successfully treated and our growing ranks of celebrity migraine suffers like Francis Rossi of Status Quo or the legendary Pam Ayres, as well as our migraine champions, prominent people who, despite suffering migraine, lead successful, productive lives.

During the evening I enjoyed meeting and talking to patients whose lives had been radically improved by coming to the Centre and were pleased to turn out to support this exciting new phase in our development. 

The NMC is a social enterprise that offers world class service by conducting funded research and paid for services that connect migraine sufferers with the best available care. Led by its CEO, Heather Sim, it has become recognised for the quality of its service and innovation and I really do enjoy being part of the board, which is working to do what we can to bring these services to as many folk as possible.

I started to have migraine in my teens and they have been a feature of my life ever since, though I can't say that any treatment I got from GPs over the years was nearly as effective as that which I found at the NMC. It's a visit that can really change your life because not only do they explore treatment with you but they put a great deal of effort into helping you understand what triggers your migraines, providing you with the kind of expert analysis that makes all the difference. 

Finally I dug out this Pam Ayres poem that mentions migraine, which like all her work makes a wonderful read.

Yes I'll Marry You ~ Pam Ayres

Yes, I'll marry you, my dear,
And here's the reason why;
So I can push you out of bed
When the baby starts to cry
And I hear a knocking
And it's creepy and it's late
I hand you the torch you see
And you investigate
Yes I'll marry you my dear
And you may not apprehend it
But when the tumble dryer goes
It's you that has to mend it
You have to face the neighbor
Should our roggie cat attack him
And if a drunkard fondles me
It's you that has to whack him
Yes I'll marry you
You're virile and you're lean
Your house is like a pigsty
I'll help you keep it clean
That sexy little dinner
Which you served by candle night
As I do the chappatis you can cook it every night
It's you who has to work the drill
And put up curtain track
And when I've got a migraine its you who gets the flack
I do see great advantages
But none of them for you
And so before you see the light
I do I do I do I do!